了解生命末期的选择
There are many options and tools available to help you plan and prepare for your health care at the end of life. A brief explanation is provided below so you may explore the issue further with your health care provider. Learning about your options for end of life care will help you make the best decisions for you and your family.
了解你的诊断和预后
"Disease-targeted treatment" or "curative treatment" refers to treatments that attempt to cure an illness. You have a right to understand how much time your health care providers would expect you to live with and without disease-targeted treatment. 这通常被称为“预后”." Understanding prognosis is critical to making end of life decisions. You have the right to ask your provider directly for his or her thoughts on your prognosis whether or not you pursue disease-targeted treatment. 如果你不明白十大赌博平台排行榜的解释, it is your right to ask for a different explanation until you feel that all your questions have been answered.
全面的疼痛和症状管理, support for you and your family and help with decision making is called palliative care. Palliative care can be provided along with disease-directed treatment or it may become the only focus of care.
- Palliative care is specialized medical care for people with serious illness. It focuses on providing relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family.
- 缓和治疗由受过专门训练的十大赌博平台排行榜团队提供, nurses, social workers and other specialists who work together with a patient's doctors to provide an extra layer of support. It is appropriate at any age and at any stage of a serious illness and can be provided along with curative treatment.
- Palliative care may be provided as a consultation service when you are in the hospital. For some people, palliative care is available in the community through clinics and some home care programs. 在生命的尽头, 当没有疾病靶向治疗被寻求, 社区的姑息治疗最好通过临终关怀来提供.
Source: getpalliativecare.org/whatis.
获得社区服务和临终关怀
在生命的尽头, 当你可能不再希望继续疾病靶向治疗, 安宁疗护可以在家中为你提供缓和疗护. Hospice is specialized end of life care that attends to patients' needs in order to enhance their quality of life. 护理由一组保健专业人员提供, 熟练的疼痛和症状管理, 为患者及其整个家庭提供舒适和照顾. The goal of hospice during a terminal illness is compassionate care and comfort rather than a cure. 才有资格接受临终关怀, 十大赌博平台排行榜必须证实只有六个月或更短生命的预后, 如果病人的病情自然发展.
Hospice team members care for you during visits to your home or wherever you live. 除了预定的访问, 临终关怀护士一天24小时随叫随到, seven days a week, 回答问题或进行紧急访问. 在安宁疗护探访期间,团队为病人提供:
- 疼痛和症状管理
- Medical care, including medical supplies and equipment, and hospice medications
- 关于实际问题的咨询, 包括你的医疗愿望, 为你的财务需求做计划, 从其他机构获得福利或额外支持
- 帮助确保您在生活环境中的人身安全
- 个人护理,包括洗澡和穿衣
团队成员还为患者及其家属提供:
- 关于生命终结的教育
- 护理人员教育和培训
- 情感咨询和悲伤支持
- Spiritual comfort, in keeping with your values, beliefs and convictions
以下是你可能想要考虑安宁疗护的迹象:
- You have decided that you no longer wish to continue disease-targeted treatments
- 你的疼痛和症状超出了你所能或想要忍受的范围
- 你想把更多的精力放在提高生活质量上
You can ask your health care provider to refer you to a local hospice agency. The hospice will be able to discuss local options for care at home or in a health care setting.
来源:修改自 bythebay.org.
额外的资源: 安宁疗护及缓和疗护基础
预先医疗护理指示
You have a right to know about the choices for care at the end of life. Sharing your choices with your health care providers helps us to take better care of you and your family. The 高级卫生保健指令工具包 and 生命维持治疗医嘱(POLST) are tools that help your family and your health care teams know what is important to you. This includes the right to refuse or withdraw life-sustaining treatment.
PREPARE is an excellent resource that can help you with important decisions and ensure that your wishes are respected. PREPARE is easy to use and will explain the kinds of decisions you may want to think about.
维持生命治疗的医嘱
A 医师生命维持治疗医嘱(POLST)表格 is intended for any adult, 18 years of age or older, with serious health conditions. POLST表格实现了两个主要目的:
- 它是便携式的,从一个护理环境到另一个.
- 它将个人的愿望转化为实际的医嘱.
我们建议做POLST,因为:
- POLST represents your wishes as clear medical orders to your health care providers. POLST may improve your chances of getting the kind of care you want and avoiding what you do not want at the end of life. 我们向所有重病客户推荐POLST.
- You (or your health care agent) and your physician may use POLST to write clear and specific medical orders that indicate what types of life-sustaining treatment you want or do not want at the end of life. Both the patient and a physician must sign the bright pink form in order for it to be honored by other health care professionals.
- 不需要见证或公证.
- Emergency Medical Services (EMS) personnel are required to honor POLST, 如果你被转移到不同的护理机构,它会一直伴随着你.
加州大学旧金山分校健康医学专家已经审查了这些信息. It is for educational purposes only and is not intended to replace the advice of your doctor or other health care provider. We encourage you to discuss any questions or concerns you may have with your provider.